Fragile X Treatment

The recent news about the experimental drug research for persons with Fragile X brought discussion among many parents about the advisability of entering the program. If their child is teen age or adult, the first concern is that they are balanced on current medication, and will this drug teeter them into problems.  The second concern, for most, is for removing their children from current medication with the possibility of having a placebo as their part of the experiment in which case the children and parents must struggle with all kinds of problems.  I don’t know how this research program will play out, but we know for certain that parents will not enroll their children without a great deal of angst.  In the meantime, our focus is genuinely on saying to the child by deed and word that we love them just like they are – very special with special gifts to celebrate.

About Naomi

I am a writer and Christian educator who works in several genres with a specialty in materials for persons with disabilities. The Long Road Home Romance Collection includes one of my books (11/14), and I just finished the first draft of a Quick Look handbook to help persons who teach an inclusive classroom. I love playing and listening to classical music, fishing, doing family things, and, in spite of my non-interest in identifying birds, have come to name them because of my bird watching husband, Bob. My children and grandchildren, because of their expertise in different fields, have broadened my lens for looking at the world.

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